Inherited Cardiac Conditions Clinical Nurse Specialist

The Inherited Cardiovascular Condition service (ICC) at UHNM offers specialized care for the diagnosis, symptoms evaluation and management of patients and families affected with inherited cardiovascular conditions. The post holder will assist in the delivery of a specialist nursing service for people with a known or suspected inherited cardiac condition. Work effectively ensuring a high standard of care throughout the patients journey from the earliest point at which concern for the individual is raised through to discharge or transition. Elicit and accurately document the patients detailed family history. Interpreting medical, family and psychological history. Obtain consent from patient to approach other family members either directly or through patient. Work effectively ensuring a high standard of care throughout the patients journey from the earliest point at which concern for the individual is raised through to discharge or transition. Have ongoing responsibility for own caseload building the relationship with each family but delegating care and referring as appropriate. This will be overseen by your line-manager, and other Clinical Nurse Specialists (CNS) in the ICC nursing team. Liaise, coordinate and support the care of families who have had a sudden cardiac death or sudden arrhythmic death (SADS) through the bereavement, screening and diagnosis process. Will be able to communicate very sensitive and distressing information to patients, parents and families, under the guidance and supervision of the senior members in the nursing team. This will be within an ongoing relationship that commences at an early stage of diagnosis. Confirm diagnostic information, such as results of cardiac investigation, post-mortem reports, genetic information, death certificates and tissue for expert pathological evaluation and DNA extraction to assist in diagnosis and counselling. To know when to refer patients on to other professionals for more specialist guidance, support, advice and counselling. Identify and prioritise urgent referrals. To liaise with, make recommendations and discuss treatment plans with consultants/registrars based on the findings of relevant investigations and patient assessment Liaise with colleagues in other specialities, locally and nationally to ensure appropriate follow up of patients. To work as an integral part of the multidisciplinary team to develop the service and appropriate referrals. To develop effective working relationships with all other departments resulting in effective, co-ordinated care for clients with all other local, regional and national organisations. To be able to work both individually and as part of the multidisciplinary team. We also aim that all members of the ICC teams will work in an environment which provides support and mutual respect for each other. To be available for telephone contact from families. See patients and families as in-patients where necessary, to ensure any outstanding issues are being effectively dealt with. To provide greater continuity of service provision. To establish clear lines of communication within the cardiac setting to ensure cohesive multidisciplinary management of patients requiring intervention Ordering diagnostic tests within agreed parameters. Ensure that up to date records are kept relating to all patients assessed. To manage own time effectively, ensuring balance between clinical and administrative responsibilities. To identify, assess and meet the educational needs of the patient and their family to include risks and benefits of screening and treatment. To promote patients' autonomy through education and support so that the individual is able to make informed choice To provide specialist advice, guidance and support for patients and relatives so that their specific, individual needs are met. Provide them with information on conditions, bereavement services and charities.